Awareness and Advocacy

Kids and families with type 1 need a voice on a range of issues. In particular, we work to dispel the myths and misunderstandings about type 1 in the community and the media.

Community talks

Contact us to request a community talk about type 1.  We are flexible and can tailor a talk to your audience.

Advocacy

The Family Centre advocates in the political arena for changes that ensure better support for the type 1 community. We have already achieved great success and we are continuing to push for change on a number of important issues, in particular better treatment of school students with type 1 diabetes and funding for Continuous Glucose Monitor consumables on the National Diabetes Services Scheme. We need your help. Give your child a voice. Read about our issues below, and use the links and the letters to tell your story to the decision makers.

2016: WACE Exam Provisions for Secondary School Students

The Family Centre believes that secondary schools students with type 1 diabetes should be supported to sit examinations on a level playing field with their peers. We worked with the Schools Standards and Curriculum Authority to achieve a change to WACE Examination provisions, reducing the burden on students to prove their needs, and giving them access to extra time to use at their discretion exams. Here's the update, as approved by the SCSA CEO, Mr Allan Blagaich:

2016 ATAR course examination provisions for Type 1 Diabetic candidates:

The School Curriculum and Standards Authority recently changed the provisions impacting students with type 1 diabetes sitting ATAR course examinations. The changes take effect for the upcoming 2016 examinations.

If you are a candidate sitting the ATAR course examinations in 2016, what does this mean for you?

In May 2016, your school should have already lodged an application on your behalf for special examination arrangement provisions. These arrangements allow you to bring your test kit, pump and food into your examinations. You can also request extra ‘rest’ time (when the clock is stopped, and you cannot work on your paper). However, if you wish to take up the new provisions outlined below, the Authority has indicated it will consider a late change to your application if you work with your school to lodge it by 26 August.

Extra time provision

Candidates sitting ATAR course examinations who have been diagnosed with type 1 diabetes and wish to apply for additional examination time will need to submit a special examination arrangement application form which has been completed by the candidate, their school and their medical practitioner.

These candidates will be able to apply for 10 minutes per hour additional time for each of their examinations. During this time the candidate may work or rest – the time can be used at the candidate’s discretion. The examination paper no longer needs to be turned over during this time.

In addition the candidate may apply for permission to take into the examination room:

-          Food or drink

-          Glucometer and test strips or electronic monitor to monitor blood sugar

-          Medication and administer it as needed. This includes the use of an insulin      pump

Candidates who claim the extra ten minutes per hour will be required to sit their examinations at the Authority’s designated special examination centre.

Sickness and Misadventure

The Authority confirms that any candidate who is sick or experiences an unforeseen event at the time of an examination can lodge a sickness/misadventure application. A committee considers each application in light of the evidence provided. If a candidate who has diabetes suffers a catastrophic hypo- or hyper-glycaemic event that prevents completion of the examination then it is possible that the committee would favourably consider the application for that examination.

If a major diabetes-related event happens to you in your exam, you need to:

-          Inform the supervisor that you cannot continue the examination

-          Contact your parents or carer

-          Ensure you complete the Sickness/Misadventure application form and lodge it with the School Curriculum and Standards Authority by 23 November 2016

-          Ensure the  Sickness/Misadventure application form includes medical evidence of the diabetes-related event – this must completed by a medical practitioner.

Questions? Contact the Family Centre.

 

Ongoing campaign: Continuous Glucose Monitoring

Continuous Glucose Monitoring (CGM) is an invaluable tool for a person with type 1. CGM can monitor blood glucose around the clock, and can be set up to alarm when levels are too high or low. It is a great safety net for people with type 1 diabetes as it can help protect patients from severe hypoglycaemia during the night. It can also help people with diabetes identify important trends and fine-tune their management, to prevent diabetes complications down the track.

The Family Centre welcomes the recent election commitments for a large scale trial of funded CGM for 4000 people with type 1 under the age of 21.